Multiple Myeloma Survivors' Stories

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Myeloma Links, Info and News     Correspondence    Provisional Removals

[Note: In this list, the first year is the birth year,
and "Class of..." refers to year MM was diagnosed.]

Jack Aiello, San Jose, CA; jackaiello@comcast.net
1949 / Class of ’95 / Type: IgG Kappa light chain / Last update: 3/08

Anonymous #1
1927 / Class of '83 / Type: Solitary Plasmacytoma progressing to Myeloma /
Surgery, chemo, long-term remission / Last update: 3/04

Marla Barnett, Texas; dreamcatcher77859@peoplepc.com
1958 / Class of '00 / Family history of immune system diseases / 
Possible Aspartame toxicity / Last update: 6/06

Bill Bauknecht, East Falmouth, MA
1937 / Class of '96 / Tumors, radiation, SCT, relapse, Thal, remission / Last update: 6/06

Martin Boling, Canberra, Australia; martindaholder(at)emailme(dot)com(dot)au
1951 / Class of '00 / Type: MGUS prog. to IgG (Kappa LC) within 3 mo. / Last update: 2/06

Helen Bos, Sioux Center, IA
1938 / Class of '88 / Type: IgA / Chemotherapy & Aredia / Last update: 12/05 

Gary Brucato; GBru165221@aol.com
1954 / Class of '06 / Type: IgG Kappa / PBSCT, Remission / Last update: 10/07

Steve Carson, Winston-Salem, NC; scarson@polynetgel.com
1943 / Class of '05 / Type: IgG Kappa / Velcade-Dex-Thalidomide, Revlimid-Dex / Last update: 6/07

Gary Christison, Abbotsford, BC, Canada; global_cowboy@hotmail.com
1961 / Class of '05 / Broken pelvis / Chemo and SCT / Last update: 7/06

Jeremiah J. Colihan, Pennington, NJ; jjcolihan@comcast.net
1957 / Class of '04 / Tandem PBSCT, remission / Last update: 10/06

Ruby Conwell, Chicago, IL; jamestoo@comcast.net
1932 / Class of 2006 / Lambda light chain / Broken hip / Velcade / Last update: 4/06

J.C. Dale, Vancouver, B.C.; jccanam@axion.net
1962 / Class of '03 / Type: IgG / Matched-donor allo transplant / Last update: 12/06

Ralph D'Errico, Tucson, AZ; emdnurse@sbcglobal.net
1952 / Class of '01 / Type: IgG / "Midi"-allo / Remission, GvHD / Last update: 7/06

Chris Ditta, Henderson, NV; vdittav@aol.com
1963 / Class of '02 / Bone involvement / Chemo, dialysis / Last update: 12/06

Kathy D'Orlando, Ormond Beach, FL; kdorlando@cfl.rr.com
1956 / Class of '03 / Type: IgA Kappa / Tandem SCTs / Revlimid / Last update: 9/06

Robin Downing, Las Vegas, NV; crazylucy8@yahoo.com
1962 / Class of '06 / Type: IgA / SCT, Velcade + Doxorubicin / Last update: 5/08

Hélène Dubé, Montréal, Canada; richard.vachon4@sympatico.ca
1957 / Class of '03 / Type: IgA Lambda / Chemo, spine fracture / Last update: 5/05

Fred Epley, near Spokane, WA; jeepepley@msn.com
1950 / Class of '06 / Type: IgA / plasmacytoma / radiation, chemo / Last update: 1/08

Diana Fearon; defearon@houston.rr.com
1952 / Class of 1999 / MGUS, bone lesions, fatigue / Blood-building supplement / Last update: 6/07

Danny Finn, near Mammoth Cave, KY; Drfinn2k2@yahoo.com
1973 / Class of '07 / IgG Lambda LC / Velcade+Dex; auto SCT; allo planned / Last update: 12/07

Kathy Fortier, Midland, MI; kathjune@charter.net
1961 / Class of '98 / Plasmacytoma on optic nerve, surgery, transplant, remission / 
Last update: 4/08

Sheryl Frank, Smithtown, L.I., NY; FraShar2@aol.com
1949 / Class of '95 / Bone lesions / Rad, Chemo, SCT / Remission / Last update: 2/07

Bart Freitag, Elko, Nevada; bsfreitag@frontiernet.net
1964 / Class of '04 / Type: IgA Kappa Light Chain / 2x SCT, remission / Last update: 11/05

Pascale Gaujacq, Paris, France; edfinacg@aol.com
1959 / Class of '06 / Bone lesions: skull, arm, fracture repaired / Type: IgA Lambda /
VAD, Thal/Dex, Velcade, CHOP 14 / Last update: 3/07

Reed Gaulding, ReedGaulding@aol.com
1950 / Class of '01 / Type: IgA Lambda / Last update: 7/04

John Gillan, Boise, IA; gillbunch@hotmail.com
1960 / Class of '05 / Type: IgA / Bone fractures / SCT, Thal/Pred / Remission / Last update: 9/06

Barb Hammack, Kensington, MD; BHboogie@aol.com
1946 / Class of '91 / Type: IgG / Transplant / Last update: 4/04

Cath Harwood, Bendigo, Victoria, Australia; bob_cat@bigpond.com
1946 / Class of '02 / Type: IgG / Bone involvement / Radiation, chemo, Revlimid / Last Update: 8/07

John Hasson, Winter Haven, FL; CHasson@clark-daughtrey.com
1952 / Class of '06 / Type: IgA Lambda light chain / VAD, Velcade, SCT / Last update: 3/08

Robert Heeren, San Bernardino, CA;  jsarrazin@guthy-renker.com
1942 / Class of '03 / Type: IgG / Amazing recovery / Last update: 1/05

Robin Holcomb, Glens Falls, NY; robinfreebird2003@yahoo.com
1959 / Class of '06 / Type: IgA / Dex and Thal / Last update: 5/08

Steven Howell, Quinnsgranny9279@aol.com
1962 / Class of 1996 / Plasmacytomas in head, SCT, Thal / Last update: 5/03

Jacklyn Inman, Dowagiac, MI; cloudeone@verizon.net
1958 / Class of '02 / Type: IgG; Autologous SCT / Last update: 2/06

Jean Jenkins, Lexington, MO; rjenks@myturbonet.com; shilo8969@aol.com 
1939 / Class of '05 / Type: IgG Lambda / Thalidomide & Dex, SCT / Last update: 4/08

Barbara Jewell, Vancouver, WA; Uppityx9@cs.com
1947 / Class of '01 / Type: Kappa LC / Last update: 8/04

Mark Edward Johnston, Santa Rosa Beach, FL; mjohnston@jfday.com
1967 / Class of '99 / Type: IgA / Tandem transplants + chemo / Last update: 5/08

Rosanne Kalick, White Plains, NY; rklibrary@optonline.net
1935 / Class of '93 / Type: IgG / Tandem transplant, Interferon / Last update: 4/04

Catherine Kerr, Watertown, MA; catherine_kerr@hms.harvard.edu
1964 / Class of '96 / Type: IgG / Meditation and Chinese martial arts / Last update: 1/07

Duane Klein,Henderson, NV; DKlein8722@aol.com
1942 / Class of '04 / Type: IgG / Thal + Dex / Remission / Last update: 1/08

Judy Knopp, PA; juleknopp@aol.com
1939 / Class of '04 / Prior cancer, bone involvement / Chemo, Allo SCT / Last update: 2/06

Stephan Laage-Witt, Loerrach (Germany); stephan@laagewitt.de
1959 / Class of '05 / Type: IgD / auto + allo transplants, complete remission / Last update: 12/07

Regina Lanz, Fort Lauderdale, FL; regblanz@mintofla.com
1955 / Class of '98 / Type: Non-secretory / Tandem transplants, remission / Last update: 10/06

Pennie Lawrence, Starr, SC; crlawlor@aol.com
1952 / Class of '01 / Type: IgG Kappa / Chemo, 2xSCT, Remission /  Last update: 10/03

Mindy Lernihan, Fredericksburg, VA; Mekaco79@cs.com
1954 / Class of '92 / Kappa Light-Chain / Last update: 7/06

Ron L'Italien, New Hampshire; Dawndrakski@comcast.net
1967 / Class of '04 / Type: IgG, smoldering MM / Zometa / Last update: 2/06

Alex Maas, San Diego, CA; a.maas@cox.net
1959 / Class of '03 / Type: IgG Lambda / Chemo / Last update: 11/07

Ronald D. Main, Midland, MI; Ron2300@aol.com
1946 / Class of '00 / IgG Kappa / Successful matched donor allo BMT / Last update: 5/04

Marvin Mason, Hemet, California; marvter@msn.com
1938 / Class of '02 / Type: IgA Kappa Light Chain / PBSCT+Thal / Remission / Last update: 1/08

Brenda Mather, Wirral, England; BEMather@aol.com
1942 / Class of '94 / Bone pain / Chemo, remission / Last update: 7/06

Gloria Monari, Palm Bay, Florida
19?? / Class of '92 / Bone and organ involvement / Chemo / Last update: 7/04

John Nesci, Freehold, NJ; oakyjohn@cs.com
1936 / Class of '90; Transplant Class of '94 / Type: IgG Kappa / Last update: 4/04

Lorna Newlin, Owens Cross Road, AL; lorna@cedar-creek.net
1938 / Class of '98 / Type IgA Kappa / Syngeneic (twin) SCT, remission / Last update: 8/07

Robert F. Oberle, Chantilly, VA; boboberle@earthlink.net
1938 / Class of 2002 / Type
IgG Lambda / lytic lesions, plasmacytoma / PBSCT, stable / Last Update: 12/07  

James Vincent Palomar, Livermore, CA; luckystrmgt@comcast.net
1962 / Class of '97 / Type: Solitary Plasmacytomas / Diverse treatments / Last update: 3/08

Patricia Pappas, Foresthill, CA; ppappas@ftcnet.net
1952 / Class of '07 / Type: Lambda L.C. / Spine compression / Natural therapy / Last update: 4/08

 Kathy Pedersen, Petesblessed11@yahoo.com
1959 / Class of '98 / Type: IgG, Kappa light-chain / Mini-allo, remission / Last update: 3/08

Bernard Pilcher, Ontario, Canada; bernard.pilcher@sympatico.ca
1938 / Class of '93 / Last update: 9/06

Joanie Pinson, Maryland; jtpinson@yahoo.com
1953 / Class of '99 / Spinal fractures / Radiation, PCSCT / Remission / Last update: 5/07

Helen Protasewicz, Edgewater, FL; hjprotas@bellsouth.net
1939 / Class of '06 / Type IgA / Back fractures / Chemo and PBSCT / Last update: 10/07

David Rabl, Victoria, Australia; rabl.dave.m@edumail.vic.gov.au
1952 / Class of '00 / Bone thinning / SCT, remission / Last update: 9/06

Peter Randløv, Copenhagen, Denmark; randlov@post9.tele.dk
1942 / Class of '97 / Last update: 4/04

Bob Rinker; bob.rinker@comcast.net
1942 / Class of '94 / Type: IgG / Last update: 8/06

Amy Roller, Sidney, OH; ajroller4@hotmail.com
1958 / Class of '05 / DVD, pulsed Dex, Revlimid / Last update: 7/07

Bob Rose, Houston, Texas; taxcatkim@yahoo.com
1969 / Class of '04 / Type: IgA Kappa LC / Thal+Dex / Last update: 8/07

Dorothy A. Russell, Inverness, FL; k4fnu@tampabay.rr.com
1926 / Class of '95 (MGUS '85) / Type: IgG /
MGUS progresses to MM over 10 years / Last update: 6/06

Jun Sarmiento, Manila, Philippines; jeansar@zpdee.net
1961 / Class of '06 / Type: IgG Lambda / PBSCT / Remission / Last update: 2/08

Barbara Schultz, Chicago, IL; barbschultz49@attbi.com
1950 / Class of '01 / Type: IgA / Thal+Dex / Last update: 1/03

Jane Simpson, Bridgnorth, Shropshire, UK; Hippychickdeva@aol.com
1962 / Class of '99 / Type: Kappa Light-chain, BJP / Last update: 9/05

Ebbe R. Skov, Mission Viejo, CA; ERSkov@aol.com
1936 / Class of '99 / Type: Kappa LC / Mini-allo + relapse / Last update: 7/05

Sandra Smith, Devonport, Tasmania; sadrismith@ozemail.com.au
1945 / Class of '96 / Type: solitary plasmacytoma / Last update: 4/04

William Smith, Reading, MA; modlcitzen@aol.com
1952 / Class of '95 / Type: IgA / Bone involvement / BMT, Decadron / Last update: 11/04

Cheryl Suzanne Spiese, Binghamton, NY; cspiese@binghamton.edu
1947 / Class of '92 / Type: IgA / Using alternative medicine / Last update: 9/05

Carole Storm, NY state
1940 / Class of 2005 / Bone lesions, fracture / Chemo, Revlimid+Dex / Last update: 9/07

Thoedorou-Moustaka, Greece; vasiliki19@hotmail.com
1935 / Class of '02 / Type: IgG Kappa / Bone involvement, ONJ / Last update: 7/06

Charles "Chuck" Thompson, Panama City, Florida; cwthompson7002@comcast.net
1963 / Class of '03 / Smoldering Multiple Myeloma / Last update: 2/07

Peter Tischler, Arlington, TX; serenasdad@sbcglobal.net
1939 / Class of '94 / Type: Kappa / Bone involvement, non-secreting / Last update: 10/07

Mary Trayer, Erie, PA; olddogtray66@yahoo.com
1950 / Class of '03 / Type: Kappa light chain / Kidney failure, transplant / Last update: 6/06

Denise Villani, Bel Air, MD; dvillani@arl.army.mil
1954 / Class of '02 / VAD, Thal/Dex, PBSCT, vaccine trial, remission, relapse / Last update: 7/07

Eric Vogt, Southern CA; desertgramps@earthlink.net
1942 / Class of '01 / Type: IgG, Lambda / Chemo, PBSCT: Remission / Last update: 11/07

Earl Wachtel, San Jose CA; wachtel@att.net
1930 / Class of '05 / Type: IgG, stage I / Last update: 5/08

Wei-en Zheng; pingguo_92@yahoo.com
1939 / Class of 2006 / Type: Stage II IgG Kappa-light chain / Velcade, Thalidomide / Last update: 6/07

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Last updated: May 10, 2008 05:51 PM -0400

 

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